It's really more than a 'little' milestone. Today Amy's CVC was removed.
I also submitted my first non-triathlon and non-team-marsh blog article today for 'publication'. It was for a 2015 hunting preview. I had an inside track in that I know the editor. But I'll take it.
I went all week without writing. I wanted to write earlier in the week because it gets more views. Then, I though I'd write Friday, and I didn't. Things continue to go on the upswing for Amy. We are still avoiding people and crowds. The reality is, that isn't too much different than our lives...more
Another week passes, and we get a week closer to going back to Austin. Amy has passed the 1/2 way point in the post-SCT first 100 days. Day #57 to be exact. If we are able to pass the remaining days as we have these last several, we'll both be pretty happy. The days, for us have been kind of...more
A 2nd post for the week. "Doctor's Orders". The tweet below the text says it all...
For awhile now, Amy has had a rash develop that isn't uncommon in stem-cell transplant (SCT) patients. It's from "graft vs. host disease". I'll elaborate more next week.
Amy was told to make sure she...more
It is kind of a weird feeling to 'want' to go to the hospital, but that is kind of how it was last Friday when the nurse and pharmacist at the ambulatory treatment clinic (ATC) at MD Anderson told us we had a couple of days off.
Our July 4 Independence Day celebration would be the first...more
With my helium post from Friday, I figured I'd post some lighter reading. That ties the two posts together, but it might go over some of your heads.
A quick update for starters. Amy's counts are slowly climbing. "Hurry slowly" to quote one of our previous coaches. So far so good. We're...more
Overwhelmingly, the question has been "What can I (we) do to help?" We don't know for sure. What we do know is that this is a long journey that we are just starting. Long hospital stays, chemotherapy, bone marrow transplantion are all part of it. And, there will be many other things come up...more
It seems like common sense, but somewhere it also seems to get lost. When you take speech class they tell you to "tell them what you are going to tell them, tell them, and then tell them what you told them." I had drafted up a post, but with today's news it changed course.
The good is that...more
I had a #GrumpyMarsh blog started for this week about things that I think really matter, but don't seem to really matter if that makes sense. I thought better to change it up a bit since there's enough grumpiness in the world already, Adding to it would do little to help things. At times it's...more
First the picture. Last week "national running day" was June 3. "National Donut Day" was June 4 or 5. Fitting. Oh and the picture...the human body is essentially a donut. Skin, muscle, organs, and bones with a hole through the middle. Yep, your mouth all the way to the other end...an actual hole...more
Today is what the Stem Cell Transplant team calls Amy's "Birthday".
Transplants conjure up images of big cuts in someone's body, and a set of organs being placed into the hosts body to replace their non-functioning organs. In organ transplants, that is the case.
With a stem cell...more
In case you were wondering, no Amy will not be defending her 70.3 Raleigh title this weekend. Last year, she won the race then headed to Flagstaff for training and later Germany where she would finish 5th at Ironman Frankfurt. When she returned, and had raced with a case of the shingles, that...more
"I don't know what any of that means. But, GO AMY!!" was the reply to an email update I sent.
I'm writing again this week. Mostly because there are a lot of people who have no idea what this all means. A 'Stem Cell Transplant'. Stem cells are kind of in the news again. They were also in...more
I did not blog last week mostly for 1 reason.
In ironic fashion, Ironman Texas was last weekend. A race that Amy and I both raced in 2012. Amy raced it in 2013, and I raced it last year. It was on Amy's 2015 schedule. In fact, in November when we went back to AnyLabTestNow to get our...more